OurHealthData

Our Vision

A Canada where the public plays a central role in shaping how health data is governed, ensuring it is used responsibly, transparently, and interoperable to improve health outcomes while protecting trust, rights, and equity across all jurisdictions.

In this future, Canadians understand how their health data is used and have a meaningful voice in decisions that shape healthcare, research, innovation, the responsible use of emerging technologies, and forming overall policy.

Our Mission

To empower Canadians to understand, shape, and influence how health data is collected, governed, accessed, and used to:

• To advance public education and health data literacy through accessible resources and open dialogue, while increasing awareness of individuals’ rights and responsibilities in the use of health data.
• To drive meaningful public engagement and leadership in key policy decisions, ensuring Canadians play an active role in shaping how health data is governed and used.
• To amplify lived experiences to ensure public perspectives inform policy, innovation, and the responsible stewardship of health data.
• To enable access to health data to support individual care, research, and the development of new therapies, while helping Canadians better navigate and advocate within their healthcare journeys.
• To foster inclusive collaboration across patients, clinicians, researchers, industry, and government to create a more integrated, equitable, and trusted health data ecosystem.

Our Pillars